What is hidradenitis?
Today, we are talking about a little researched and unusual disease, but which I have and which many of you also have.
To understand better, we are going to separate the information as in a flowchart.
What? How? When? Where? Why? Who?
Come on, let me explain it to you!
Before talking about what is hidradenitis, I will explain why I am doing this video.
I'm twenty-six years old and I've noticed signs of the disease since I was nineteen.
I always had a lot of difficulty to find information about hidradenitis,
I always did researches, and never found cool stuff about it.
Another difficulty that I had was to find a doctor that knew about the disease, and that also knew how to treat it.
Until today, I thought that hidradenitis was a disease that affected the glands.
If you research "hidradenitis" on Google, it will show to you: "Inflammation of the sweat gland".
Guys, but that's not it.
We continue to use this name "hidradenitis", because it is now popular, but hidradenitis is in fact an inflammation...
Of the hair follicle!
Of the hair follicle!
Of the hair follicle!
Seriously, I'm really happy to talk about this, because I didn't know what it was! Are you aware of it?
Hair follicle!
I also thought that hidradenitis was an inherited disease, exclusively genetic, but I also found out that it's not like that…
Another thing that I thought was that hidradenitis was a disease that only affected fat people like me,
another thing that is not true.
Once, a doctor told me that hidradenitis was a disease that affected only women.
Today I know that men also suffer from hidradenitis.
Well, these were the wrong things that I thought about my disease, and you may also think a lot of things until now.
I had the opportunity to research, to find data, to collect updated information about the disease.
And check it out: the first time hidradenitis appeared in the medical records was in 1939, not a long time ago.
And do you know the year of the researches that I used to make this video?
2016! Last year… Seriously.
This means that if I had done this video two years ago, we would have a lot of wrong information here.
But let's FINALLY share the correct information!
What is hidradenitis?
What is it?
Hidradenitis is a chronic, inflammatory, recurrent, painful disease that affects the hair follicle
and that generally appears in the end of adolescence and in the beginning of the adult life.
How? It forms injuries, in nodule format, that become abscesses, which periodically inflame.
When?
Isolated cases of nodules and abscesses do not constitute hidradenitis.
If within six months two to three episodes happen, and if they occur in a typical site, then you may have the diagnosis.
But Jessica, how do I have this hidradenitis diagnosis?
Actually, no laboratory diagnosis is possible, that is, there is not an exam that you do which results in hidradenitis.
Some doctors even perform "ultrasonography"...
"Ultrasonography". Before I suffered from it, now I'm cool… Some doctors performed ultrasonography…
To see the extent of the injury, how your injury is, but this exam was never performed in me, for example.
What happens is the clinical diagnosis, that is, you go to the doctor, he talks to you,
understands your history, and examines your body, sees your injuries.
He learns about the episodes that happened with you, and then he may provide you a clinical diagnosis of hidradenitis.
Where?
The typical and common sites of hidradenitis are the bending sites, armpits,
inguinal site, which is the site a little above the groin,
genitals, groin, butt,
intermammary and inframammary, breasts, men and women,
the belly and also the ectopies. What are ectopies, Jessica?
Ectopies are uncommon sites for hidradenitis. They are called ectopic hidradenitis!
Why?
Well, everything starts in a follicular occlusion process; it occludes the follicle. What is that?
@#&%
It even sounds like a porn movie, doesn't it?
I occluded the follicle. @#&%, guys, it occludes the follicle, seriously. But anyway…
What is that means? That the hair wants to go out, but it is not able to.
And then, little cists are formed. These cists are filled with keratin. This keratin suddenly bursts and goes to the skin.
Keratin is a super irritating agent.
Because it is such an irritating agent, our body performs an inflammatory response to be protected.
Then the nodule, the abscess is formed, and it inflames,
and finally the fistula, which is a honeycomb shaped scar, which is a trait of the hidradenitis.
It's cute, isn't it, guys? It's sad, but cute.
Yes, but the cause is not yet known.
Who?
0.035% to 4% of the world population has hidradenitis, approximately.
Science believes that this is 1% of the world population. 1% of seven billions is a lot of people! Where are those people?
Where are they? I'll give the spoiler: they are at home, crying and suffering.
We do not have an accurate estimation here in Brazil, but we know one thing:
The average delay in diagnosis is 7 to 12 years,
that is,
a person may stay with the disease 7 to 12 years without knowing about it.
Women have more hidradenitis than men. 3 to 4 women for every man have hidradenitis.
We also know that the disease starts around 21 years old.
The more frequent site of hidradenitis in men is the armpit-mammary axis,
and in women, the inguinal-genital site, ninety-three percent!
It has a lot to do with depilation, girls!
10% of the patients with hidradenitis have lost their jobs!
23% of the patients with hidradenitis believe that the disease interferes in their production.
The lack of work affects 58.1% of the patients with hidradenitis.
Hidradenitis is one of the most harmful diseases in dermatology to the patients' quality of life.
We will talk about all the social and psychological aspects: the isolation phase, how to deal with the disease, with the pain,
the relation with family, friends, in the next episodes of our series, keep an eye on it…
Why? One of the things I always asked myself is: Why do I have hidradenitis?
It is not a genetic disease, but a predisposition may happen, from 5 to 10% of the cases.
Including me, guys. I love real statistics.
But there are also the environmental factors.
I will tell you about my case, in which three environmental factors helped to initiate the disease.
Smoking. Guys, smoking is bad.
Depilation, for those who do not know, is a super aggressive procedure.
And skin friction due to overweight, it is hard to be hot. It is really hard to be hot!
The most asked question by people who have hidradenitis, by our families, by our friends is: Is there a cure for hidradenitis?
But take it easy, I will answer this in the next episode, next Tuesday.
I hope that you have enjoyed it, please tell us what you think, if you want to know more about hidradenitis,
if you want to read more about it…
Please visit the site "Minha Vida", you will find it below; there is a special section about hidradenitis.
Here: "Gorda de Boa" quality seal!
I hope you have enjoyed it, subscribe to my channel for more, and I'll see you next Tuesday.
@jtauane! Follow me on Instagram!
Bye-bye, guys, Cecília!
(No, no goodbyes, because we will be back next week)
No, no goodbyes, next week there will be more!
Great, I love it!

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