[Intro Music. Vincent Tone - New Summits]
Hey guys, so in today's video, I'm going to be doing a Q&A. This is my yearly Q&A.
I did a Q&A last year around this time so I will leave a link to that in the
description below for you guys to check out. So I asked you guys a bunch of
questions on Twitter, Instagram, and YouTube - to ask me questions, and I
literally told you to ask me absolutely anything, it did not have to be health
related. So today I'm doing that Q&A, I actually surprisingly did get quite a
few questions which I'm pretty happy about. I'm going to answer them now. Okay so
first I'm going to start with the questions from Twitter. @chr0nicallycute
she asked me - what is your favorite self-care activity to do when feeling
low. Um, I honestly just relax [laughs] I like to sit on my bed, with my laptop. I will go
on YouTube, I'll watch some makeup tutorials, some vlogs. Um I watch a lot
of Australian youtubers, I will watch Shaaaanxo, she's from New Zealand,
I'll watch Nikki Joy, I'll watch Sharon Farrell. Those are like
my top 3 favorite youtubers, I love watching their videos. So yeah that's
pretty much what I do. And I'll also put on a face mask, I love doing face masks a
lot lately, so that's what I do, and I'll take a really hot bath too, baths always
makes me feel better. @Josh_CFSblog asks me - What message would
you have for yourself when symptoms first started - symptoms of your chronic
health conditions. I would tell myself that it's not the flu because when I
first got sick I thought it had the flu. I got sick all at once, it just bam, it
like, it just hit me, it was all at once and I
just thought I had a bad flu, and I went on thinking that for a month - not
knowing that it was very early stages of Lyme Disease. So obviously not very good,
so if I could go back in time and tell myself one thing - it would be to get my
butt to the doctor's because you are not experiencing the flu, you have Lyme
disease, and if you stay this way, you're gonna be very sick for the rest
of your life. So yeah I think I'd tell myself that.
Ok so questions from Instagram- @kimmy.grace16 asked me - Has anything good come from
being ill? There are some good things, like obviously, being sick sucks. You
can't enjoy life the way you want to enjoy it, you have to stay home all of time, we
can't really go anywhere, we can't really do much, and you're very limited
by what you can and can't do. But there are some things that I'm kind of I guess
grateful about being sick, or some good that has come from it. Probably meeting
people online with the same illness I have, or similar illnesses and conditions
is probably one of the best things, um yeah, I really like talking to people, seeing
their experiences and all that sort of stuff, that's probably one of the best.
Also I think becoming sick has made me more aware of chronic illness and
different types of disabilities, different types of illnesses, that sort of thing. It
definitely made me more kind, compassionate, and I've also started my
youtube channel because I was sick. And also there is some good within myself
that has come from it. I've kind of learned to just be myself and
not really care what other people think, which I think is a great thing, so I'm
much more comfortable being myself than I ever was, when I was in a school
environment. @chronically.discussable asked - What do you feel is the most important
thing you've learned since becoming ill? Probably that doctors don't know
everything, they don't. And there are many doctors that are complete A-holes out
there, and there are doctors who aren't kind and compassionate, there are doctors who
are lazy, who really couldn't give, you know, they couldn't give two cents about
you. So that's probably one of the other things that I definitely learned, and
that the medical system is super corrupt, it's very corrupt, especially when it
comes to Lyme Disease. @fibrofairy asked me - If you could be healthy again for one
day what would you do? First of all, that would be amazing!
Um, I would definitely enjoy it, that is for sure. I would go for a walk in the
woods, I would run. Like I haven't full-on ran since really becoming sick, I would
do cartwheels - I haven't done that since becoming sick. And if I was somewhere
tropical I would definitely go snorkelling on a coral reef, and I would
100 and thousand percent go diving sharks. I've always wanted to go diving
with sharks, um, I've been swimming with sharks, but not actually diving with them
so, that's on like the top bucket list of things to do. If I could be healthy for
one day, no medical problems at all, no pain, no nothing - I would go diving with
sharks. @surviving.hope asked me - Do you follow any special diets for Lyme
disease? Currently I don't but there have been many times where I've tried diet
after, diet after, diet after, diet and none of them helped me. Um I been on the Paleo
diet multiple times, I've been on the GAPS diet multiple times - both for more
than six months, and I didn't have any improvement at all, in any of my symptoms,
nothing improved. So now I eat what I want, when I want, and if and when I'm
able to eat. I mean I do have, I guess a healthy balance of healthy foods and bad
foods, like it's not all bad and it's not all healthy, it's just kind of even. So
that's kind of what I do. Okay next for the questions on YouTube. I posted a
short video, asking you guys, to ask me questions, and you did not disappoint, I
have a lot of questions from YouTube, and a lot of great ones. Bill Thompson asked
me - What treatments have you tried or been through? Western medicine, aka antibiotics
etc. Herbal protocols such as Cowden, Buhner, White. Other treatments such as
Rife, Ozone, hyperbaric, hyperthermal? I had to make a list for this. I made a
video about all of the treatments I have tried for Lyme disease, so I'll leave
that in the description below if you want to check it out Bill, because that
has, like everything in it. Like I talked about pretty much everything that I
could talk about, and that I could remember. I will say there are a lot of
things, and a lot of treatments - for a lot of things I've tried, that I actually
don't remember trying because I have - I've tried so many things over the years,
so it's really hard to remember everything, but um these are the main
things that I've tried, and remember trying. So at first I was on (oral) antibiotics
for two years. It wasn't just one antibiotic,
I worked up in stages, there were lower antibiotics - like you know the classic
doxycycline, I was on minocycline, there was a few other antibiotics. I was, I
think on at least eight different antibiotics in total I would say. I was
also on different medications, or drugs I think it's fluconazole you take, I was on
that for Candida. And I went to a Naturopath or Herbal doctor, I think
he might have been a homeopathic guy, I can't even remember. We did some sort of
stuff with vitamins, and he gave me a whole bunch of vitamins to try, which I was
on so many different vitamins, and supplements, and none of them were working,
because I later discovered I had malabsorbtion. I tried Rifing, which I actually do own
a Rife machine. But before we owned the Rife machine, I went to a guy for about
a year Rifing. The Rife machine, you know, it did help me some but it didn't
help me significantly, and going to the guy was super expensive so my mother
just figured why not buy a Rife Machine, and so my mom bought a Rife Machine, and we have one
one and we use it. I know I should be using it so much more and I was using it a lot
during the summer, but with the new protocol I'm on with my naturopath, I
really haven't doing much Rifing. But it is a very handy machine. Like if you have
a cold or flu and you use that machine, then it really helps to stop the bugs,
like it is amazing, and it totally does work. Like I mentioned earlier I tried
various herbals, like I've been on Red Root, Resveratrol, the basic Lyme stuff
that's supposed to help Lyme, I've been on that and again it made me Herx,
which it's a good thing, but I wasn't really doing any detoxing at the time, so it
really didn't help me in that aspect. I've also tried, you know, to help with
pain and stuff, like I tried a chiropractor. I went to my chiropractor for years, and
years, but for $40 and needing to be adjusted monthly, and it
didn't make a big difference. I also went to the osteopath, which actually did help
me, but it was very expensive, and I really I can't afford it. Acupuncture,
it's the same story with acupuncture. I don't know if it helped me because I
wasn't doing it long enough, and if I did it long enough it might have helped me, I
don't know because I didn't continue with it, because again it was expensive. I
did IVs of myers cocktails for three years, and that actually did help me. That
was one of the few things actually did help me, it helped me to have some energy.
It did not help my pain at all, um but it did give me a bit more energy I would
say, um and it did actually help me sleep, so it gave me some vitamins but, it
didn't help me as much I would hope it too. I've also tried some various
homeopathic things like tinctures and stuff with my naturopath, the current
naturopath I'm seeing. So yeah I'm actually back on some homeopathic stuff
at the moment too. So yeah, there's so many stuff to try with Homeopathy, and
allopathy, and all the type of stuff, so yeah there's a lot of stuff to try.
I also did glutathione, um that really did not help me. I took it at a time when I
was also killing bugs, like doing ozone, so I really can't tell if that helped me
or not. I did GcMAF. Again, I don't know if
that helped me or not. It was extremely hard for me to determine what and
wasn't helping me, when I was doing so many things at once and constantly
experiencing herx reactions. Bioresonance Therapy. This did not help me
one bit. I did this weekly for about three years,
saw no improvement at all. It's supposed to help with your pain and inflammation,
but for me it didn't. I also had Hydrogen Peroxide injected into it bag of saline
to help kill off some of the Lyme Disease, and yeah, gave me a bad Herx Reaction, a really
bad one. I also did a Low Dose Naltrexone which is also supposed to help with pain,
again that did not help. I also did IVs of Ozone,
which I did a lot of them, and I did them week, after week, and I made myself
extremely sick with those Ozone IVs. Like at the time, I was like, I just want to get
better okay, just, I don't care how sick I get, just try to get some of those bugs
out of me and make me better, which, it didn't make me better.
I had the worst Herx reaction. I also did LDA and LDI which is Low Dose Allergens. I did
that for I think about two years, that did actually help me some, it improved my
immune system, but it didn't improve any of my Lyme Symptoms. And like I said
earlier I also went on the Paleo diet and the GAPS diet both did not help me.
Those are just the ones that I can remember. There are so many other things
that I tried that I'm pretty sure that I forget. So yeah, it's a very long list of
things I've tried ,and a very short list of things that've actually helped me.
Dyllan asks - Is there anything that you wish academic or scientific thought
around Disability, Chronic Illness would handle better. I'm currently in my second
semester of a social science program and thinking of entering a research group so
I can study persons with Disabilities and Chronic Illness. Although I don't
consider myself Disabled I do have two or more Chronic Illnesses. I would love
to better our knowledge about what it's like to be Chronically Ill. Do you think
that is a valid pursuit are social sciences not the best way to go about
it. This is a bit of a difficult question for me to be answer, but I guess I wish
that scientific and academic taught would just put more thought into how whatever
illness that they have, you know, how it affects people, and I wish able-bodied
people would put more effort into trying to understand Disability and Chronic
Illness, I think that is very important. You usually think of Chronically Ill or
Disabled people - first of all most people haven't heard the word really
Chronically Ill referred to people. If you are Disabled, but they only think the
stereotypical blind, deaf, or person in wheelchair, which it's so much more than
that, so I think our overall understanding and
thought, and the way that we view Chronic Illness and Disability definitely needs
to change. And do I think Social Sciences is a valid pursuit. I think if it's
something that you feel is right for you to do, and if you feel that you are
interested in that sort of thing, and you think that this is, you know, the best way
to learn about persons with Disabilities or Chronic Illnesses then go ahead and
do it, because you know what, there are some research groups, and research that
really could help persons with disabilities and Chronic Illnesses.
So yeah, I - this is a difficult question to answer, but I mean, I think if
it feels right for you, and if it's something you want to be apart of,
you know what, do it. Um, hopefully it helps to create change overall. Vivianne Merr, she
wants to know - What were your major symptoms? I wrote down my main symptoms
because they have changed from now, you know, from then to now. So when I first
got sick I had severe nausea, and the nausea was so severe that I carried
around a puke bucket with me everywhere it went because I felt like I was going
to puke at every minute. Fun story, I actually had to get my braces put on
when I was severely nauseated. Um, I also had a lot of dizziness, I had a lot
of weakness, I had a lot of aches and pains, I felt like I had the flu. I was
very fatigued, I had absolutely no appetite, I had a lot of stomach pain, I
had a lot of constipation, and I slept a lot. What I have now is widespread pain
all over my body, muscle pain, joint pain, bone pain, you name it, nerve pain, um, now I have
a lot of fatigue, weakness, exhaustion, insomnia, migraines, poor sleep, constipation.
And on bad days I will get palpitations, chest pain, severe nausea, and spells of
near passing out. Okay this is last question. Jennifer S asks, I would like to
know your experience with applying for Disability Benefits here in Canada.
This is a bit of a hard one to explain, um, because I really don't know much about
the whole Disability Benefit System here in Canada, um even though I should. Like
my mom, she handles all that for me. But from what I understand, because I got
sick at the age of 13, and I have never worked a day in my life, I cannot get any
Disability Benefits at all, none, like- I can't get anything that's
Disability-related. I had to go to social services or
Welfare to get any sort of money. It does suck a bit, it feels very weird to have
to go on Welfare as a Disabled person especially someone who's been Disabled
since they were a child, and then, you know, kind of not be on the Disability
Benefits Program because I haven't worked. So yeah, it's not the greatest
feeling. And I actually don't get a whole lot of money as well, so I do have to try
to be careful the way I spend my money, and it's nearly impossible to save up
for anything. I'm not eligible so Welfare is my only option. That's my experience,
um, we did try to send in things so I could receive it, but I couldn't because
I hadn't worked, so that's kind of how it played out. I'm sorry I couldn't have
been of more help, but that is my experience with this. I wanted to thank you
all so much for asking me questions, I'm so happy I got to make this video. Um, I will
be doing these yearly, maybe I'll do them more often if you guys request a Q&A.
Thank you for watching this video. Please be sure to give it a thumbs up. Please be
sure to hit the notification button down below to get notified when I upload new
videos. All my social media links will be in the description below, and I hope to
see you guys next time, bye!
[Outro Music. Vincent Tone - New Summits]
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