Simka's World
Hi everybody. Today I will be answering your questions.
Dehlia Draycott is asking. I will answer the questions about Lera in a separate video.
To you and Artyom: How has your relationship changed
after Sema's birth? I think she means Sima?
Perhaps you already talked about it, but I can't remember.
Will you develop your YouTube channel? Does your family help you with Sima?
Basically, I've already told you
that my relationship with Artyom has changed quite a lot.
First of all, I've changed. I started dedicating more time to home and children.
And secondly, I started having fewer
complaints against Artyom. So, if before Seraphim's birth
I had many finance related complaints,
because Artyom is trying to fulfill himself in a field that he loves,
but which is not always very profitable.
There were even talks about divorce at that time -
that's how serious it was for me.
It has become much easier now. I try valuing not only
the result, but
the efforts, the desire to do better.
To be honest, I see how hard he works and the effort he puts into it.
Actually, financial instability
isn't a very nice thing, and you will always want to have stability. But
I realize now, that it's not the worst that can happen to a family.
Somehow, when
a sick child is born, you look at all other problems
somewhat differently. And I know now
that certain external problems
are much easier to deal with than the internal problems in a family.
I'd rather have a close-knit, happy and loving family,
than any other.
Will I develop my channel? I'd really like to add more
of my creativity to the channel. In the meantime, I've hidden my head in the sand.
One day it will happen. Ok. Does your family help you with Sima?
Artyom's parents live far away, and we live with my
parents, and they are obviously helping a lot.
My mom stays with both, Lera and Seraphim.
Alena Like is asking: "How do you edit your videos?"
Movavi Video Suite. It's really good software
for beginners. But the amount of subscribers is growing,
I feel certain responsibility, there are some things I'd like to do,
but my software isn't capable of doing them. I'd love to learn Adobe Premiere,
a professional software.
But, at the moment, I haven't got the brains for it.
Anyway, I do have plans.
A question from Elenor Kraft:
does Seraphim have a favorite toy, that he responds to the best?
Seraphim doesn't have a favorite toy. He does respond to some toys,
especially the new ones, but then he gets used to them.
He stops even looking at them.
So I take away and change his toys pretty often,
so that he doesn't get accustomed to them.
How do you handle his seizures? Any secrets how to help him quickly?
When Seraphim had acute seizures with fainting,
if the seizure lasted longer than two minutes, we gave him a Relanium shot,
by ourselves. I mean, we didn't call or summon anyone, just did it ourselves.
Now, when the seizures have stopped,
we are left with muscle spasms,
and when
those occur, nothing needs to be done.
Leren G is asking: "Does anyone else help you with the child
(moms, grandmothers, aunts)? If so, how do you spend your free time?
Do you go out?" I've already said that my mom is helping us.
Yes, we do go out; mainly meeting
our friends. We rarely go out to any establishments.
Mainly, we just visit each other's houses.
A question from Даю Ценный Пример.
What do friends and family who hang out with you need to know?
Perhaps certain topics are considered taboo?
Or maybe you taught your friends how to help Seraphim when it's needed?
Not sure I understand the last part, but I'll answer the rest.
Friends, families need to know, and they, actually, already know,
that we are positive thinkers and don't like when people feel sorry for us,
and start yapping how bad everything is.
So no particular taboos. I can answer
absolutely any question.
Me and my friends are very close.
We don't have topics we can't discuss.
Including, any concerns I have about Seraphim.
PanyGuava is asking: "Hello! Are you a religious family?
What do you think of atheists? What do you think of homosexuals?
Do you try, sometimes, to live a normal life, like everyone else?"
Well, of course, we try to live
a normal life. Not sometimes, but always. And I think we are pretty good at it.
We are religious, but we try not to judge whoever
thinks differently. We believe that you're responsible for your own actions.
People should live the way they want. Shashana is asking:
"How do other children respond to Sima?
Do they pity him? Are they aggressive towards him?" All children
treat him as a toddler. They see that he is lying down and
think he is a baby.
They see that he doesn't respond,
doesn't answer them and they quickly lose their interest.
The only thing that
Lera's friends might do is pretend to be "mommies".
Lera does it as well. "Hi, sweety, have you eaten today?"
So, they would speak with him like that, he, again, won't respond and they
lose their interest too. A question from Elena Shelchkova.
Do you have time for yourself?
To be honest, I am certain that any mother can find some time for herself
by giving your "offspring" something to do or asking someone
for help. It's important to do so, but sometimes I'm too lazy.
Many questions from Svetlana Romanova.
Any plans for Sima's rehabilitation in Moscow or in Poland in the coming year?
They have many good centers. In the meantime
we plan the rehabilitation in our region only.
Do you have any forecasts regarding
the expectancy of life for a child with this disease?
No, no one could provide us this information
and we have no idea what might be
Seraphim's life expectancy.
In fact, we try not to think about it at all.
How do you plan to fight for Sima's health and self-sufficiency in the future?
We plan to take care of him, to look after him, to exercise.
Did you try to apply for assistance funds? If so, will you do it again?
Yes, we will definitely try to apply for assistance funds.
Can epilepsy be cured or just treated?
It's very individual. Most likely, in our case,
Seraphim will have to take medication his entire life.
Do you plan a sea holiday with your children?
Yes, unfortunately, we couldn't go on a sea holiday this year,
but next year I would really love to take the children on a sea holiday.
A question from Nastya Lukyanova.
It's noticeable that you have a very strong relationship with your husband.
How can you build a relationship like this?
How to maintain it and make it stronger?
What type of wife are you - easy-going or family leader?
Did you have a church wedding?
There are no perfect relationships.
We have our issues, just like anyone else.
We had a church wedding. Not straight after the registration,
but when I was already pregnant with Seraphim. I really
want to be an easy-going wife. I can't always
pull it off, so
if anyone has any tips how to make a relationship stronger, I would be grateful.
Elena Boldunova is asking:
"Natasha, do you have a driving license? Do you drive?"
I have a driving license. I drive, but
I don't do it very often, I'm out of practice, so
I drive around Bor - our small town,
but won't be able to drive to Nizhny Novgorod, for example,
because I am a coward. I am not a coward, but I'm afraid.
Kanal 08: Hello, If I understood correctly,
Seraphim had a development delay after his heart surgery?
And epilepsy appeared straight after this surgery as well,
at the same time that he stopped smiling?
Seraphim was born with a myriad of health issues,
and hasn't had a normal development since birth.
His epilepsy appeared before the heart surgery;
that is, the heart surgery wasn't the root of our problems.
It definitely took us a step back
in his neurological development.
I've already mentioned that Seraphim stopped smiling
and stopped cooing after this surgery as a result of the anesthesia,
but this surgery was inevitable.
Since it was vitally important.
Aleksandra Aleksandrova is asking: "Hello. Does your son eat?
Oops. How does your son eat? Through a feeding bottle?" We eat with a spoon,
but unfortunately, half lying - half sitting.
Soon we would like to learn how to eat while sitting.
Anastasia Belokovylenko asks: "Did you and your husband do a karyotype test?"
Yes, we both did the karyotype test. The result was normal,
no abnormalities.
46 XY, 46 XX
A question from Maria Kirikova.
Natasha, when you finish your maternity leave, who will stay with Simka?
Or do you plan to stay at home and keep the exercises?
I would really like to go back to work, after some time, but at the moment,
I have no idea where to go back to.
My mom is at retirement age and if after a couple of years,
she is retired, think she won't mind -
If I go back to work - to stay with Sima. We're also
looking into hiring a nanny or a babysitter.
Ksenia Chernikova wrote: "Hello, Natalya. You are so cool!"
Thanks. "I've been watching you for a while, as I've recently "joined your ranks."
I constantly re-watch your videos and try to pull myself together,
but unsuccessfully. I try to fight it, but my mind wanders to the darkest places.
Would you be able to write to me privately?
Thank you in advance.
To be honest, I'm a little afraid of this form of communication, since I'm not
a qualified psychologist and have no idea,
how to communicate with a person in a difficult state.
Moreover, I'm afraid to do harm to this person. If your mind really wanders
to dark places, as you say,
and there are issues that you cannot resolve,
I believe it's necessary to contact
an expert, a professional who will be able to help you.
Next question from Valeria Balahanova.
What part in little Sima's life did a speech therapist and a defectologist play?
Was it helpful?
We couldn't expect quick results from a defectologist in our case.
A speech therapist, however, helped us a lot with feeding.
And a last question from Alena Samborskaya.
Would you like to open a rehabilitation center for children in your town?
My mind doesn't think in that direction yet.
I think we have enough rehabilitation centers
in Nizhny Novgorod, to be more exact.
To try and
open another one. I don't see the point.
But I always - don't know how realistic it is,
but I'm having some thoughts of starting a society of
families with special needs children.
Not just for rehabilitation, but actual communication,
socialization. So that those mothers, who don't have any friends, could find them.
Entire families could interact, children could become friends.
Maybe, some day in the future, I can do something like that.
I don't know.
At the moment the idea sounds too big and too broad.
Thank you so much for your questions.
Just looking at the list of questions. I haven't replied to
even half of your questions. But I will keep filming Q&A videos,
will keep answering your questions, so if you have more questions,
please write. I love you all very much. Hugs. Bye.
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